NO: Misleading plan robs disabled of respect

I have dedicated my life to supporting those with developmental disabilities, first as a special-education teacher and now as operator of a well-regarded adult family home. Initiative 1029 is the most harmful and offensive political action taken against people with disabilities in my lifetime.

People with disabilities have long worked to shed damaging labels, to break away from institutional treatment, to achieve acceptance and success in our communities. Concepts such as inclusion, supported employment, independence and self-directed care have led to a fundamental shift in how we care for and support those with disabilities. The adult family home we operate for people with disabilities is based on these concepts.

There are many homes like ours scattered around our state that define individuals not in terms of their disabilities, but as people first. Progress has been great and the future is promising.

Sadly, I-1029 threatens to undo that progress. The initiative forces a one-size-fits-all, institutionally minded model on those of us working in the community for people with disabilities. It goes so far as to redefine all caregivers as “health homecare aides,” implying that people with disabilities are “sick.” This is exactly the type of prejudice we’ve spent many years fighting to overcome.

I-1029 prescribes a detailed, inflexible and medically driven training program for all caregivers. We don’t provide health care. The people we support aren’t sick. But homes like ours and our caregivers still would be required to go through this training, taking us away from those we support.

The requirements are so unrealistic that our wonderful part-time assistant, a well-educated woman who works full time in another job for people with disabilities, would be required to take 75 hours of training that have nothing to do with our home and what we do, just so she can help us out a mere handful of hours per week.

Recently, I was appointed to the Governor’s Long-Term Care Task Force Workgroup on Caregiver Training that examined this issue closely. Our work was instructive, both for what we found and what we didn’t find. We found that the National Conference of State Legislatures had identified Washington as one of three states that should serve as a model for innovative quality assurance methods.

We learned from a Washington State University survey that most in-home caregivers felt their current training adequately prepared them to do their jobs. We found that Washington’s current training delivery system is well aligned with a person centered model that provides flexibility for consumers to accommodate for setting and individualized need.

What the task force did not find was any evidence of a need to significantly change our long-term care training delivery system or data to suggest that the inflexible, one-size-fits-all training standard proposed by I-1029 would improve care.

As a result, when this issue came before the Legislature the last two sessions, lawmakers rejected the proposal as unnecessary, ineffective, too expensive and taking money away from critical social services.

Nevertheless, a large special-interest group, the Service Employees International Union (SEIU), has continued to use its money and political power to pursue a self-serving agenda. It wants to write the rules and then get paid millions of taxpayer dollars by the state to deliver the training to its members. When it couldn’t convince our elected officials, it decided to spend at least $500,000 to develop this misleading proposal and put it before voters who don’t have the time to dig into the details the way the Legislature does.

Please, take the time to learn about I-1029 and how it impacts people with developmental disabilities. Everyone deserves respect, and to be treated as people first. I-1029 fails to do this.

Craig Fredrickson is a former award-winning special-education teacher. Since 1994, he and his wife have run the Fredrickson Adult Family Home for people with disabilities in Kent. He is serving his fifth term as chair of the DSHS Adult Family Home Advisory Committee and co-authored a resident-rights curriculum for DSHS specialty training.